TBRS Community
We support families affected by TBRS and advance research on the disorder.
Join the 2026 TBRS Exercise Challenge
Join the 2026 TBRS Exercise Challenge
TBRS Stars Get it Done!
Overgrowth Syndromes Alliance
Overgrowth Syndromes Alliance
Visit Our New Website
Visit Our New Website
Uniting families, scientists, and clinicians—we advance patient-centered research and support for everyone impacted by Tatton Brown Rahman Syndrome (TBRS).
Join TBRS Family Connect
Join TBRS Family Connect
The TBRS Community is driving patient-centered research forward! We prioritize what matters most to families, and fund the development of critical research tools.
Join the TBRS Research Hub
Join the TBRS Research Hub
The TBRS Community is driving patient-centered research forward! We prioritize what matters most to families, and fund the development of critical research tools.
Participate in the Patient Registry
Participate in the Patient Registry
Join the TBRS & DNMT3A Registry to advance research, improve care, and support clinical trials for TBRS, HESJAS, and related disorders.
Ways to Give
Donate
Donate
Donate to the TBRS Community
Become a TBRS GEM (Giver Every Month)
Become a TBRS GEM (Giver Every Month)
Join the Dorothy G. Hatton Legacy Society
Join the Dorothy G. Hatton Legacy Society
Please click the link to complete this form.
TBRS Community Store
TBRS Community Store
All proceeds benefit the TBRS Community. The Tatton Brown Rahman Syndrome Community aims to support all families affected by TBRS and advance research toward interventions...
Social Media and Resources
Your Personalized TBRS AI Advocate | Citizen Health
Your Personalized TBRS AI Advocate | Citizen Health
Transform hours of medical paperwork into instant answers with Citizen Health's AI Advocate. Built by rare disease families, for rare disease families, get answers to your questions about medications, treatments, and care coordination for rare diseases. Trusted by 50+ patient advocacy groups.
Public Facebook Group
Public Facebook Group
Private Facebook Group (For patients, friends, family, and researchers)
Private Facebook Group (For patients, friends, family, and researchers)
YouTube
YouTube
The Tatton Brown Rahman Syndrome Community aims to support all families affected by TBRS and advance research toward interventions. On this channel, we share a peek into the lives of individuals diagnosed with TBRS, the latest TBRS research, and clinical information. Please subscribe for frequent updates and find more information on www.tbrsyndrome.org
Instagram
Instagram
Twitter / X
Twitter / X
View on mobile
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