She has had three dialysis treatments and will have a fourth on Friday. Her site 'held' - it worked,. "Thank you" all for your love and prayers and sending good energy and healing, hopeful light. :-) Amen. Hopefully she will be strong enough to come home on Saturday. Her schedule to go to the dialysis clinic will begin next week, three times a week , four to five hours a day. Please continue to pray for her strength and fortitude through this demanding regiment.
I am still in the midst of my healing challenge from the MS set back. I am on another medication for a week. And I am waiting for the physical therapist to come and evaluate me here and design a routine to help ease the pain and increase my mobility. I may need to see an orthopedic specialist that will be decided next week some time. Meanwhile I am moving about daily as best I can - the intense pain has eased and I can take ten to 12 steps pain free and then it starts to tighten and hurt and the icy hot numbness intensifies. I can also walk without the rollator for a few steps now where before I could not. Although it is way safer to walk with the rollator so I don't push the heroics!! :-) I am glad when I can get outside to our deck and really soak up the sights and sounds and smells of nature. I feel free when I am outside. Needless to say, I have a ways to go. And I don't know what the "end" of this set back will look like and feel like in terms of mobility and pain to which I will have to adjust. I am hoping for the best and managing as best I can. Ya know?
Skipp and I still enjoy our Tuesdays and Wednesdays. We sleep in and then have a leisurely brunch and enjoy our coffee on the deck. Later, we barbecue, and have wine and "happy-hour' and watch movies and enjoy our Gracey-Blue We catch up with house stuff and with each other (use your imagination), we go for rides and talk and listen to our favorite music and Skipp usually grocery shops. We love every moment of those two days we have together.
And August 29th is our wedding anniversary and BOTH our birthdays. Yes, we have the same birthday and we were married on our birthdays in 1996. Cool, huh? :-) August 29th is a wonderful day of celebration!! And Skipp has the week off!! "YAY!!!
And then it is Autumn - Hallelujah. I always feel better once the weather turns cooler and drier. This has been a very oppressive summer - and the heat and humidity are such a challenge for me. And yet I came to realize something about MS. I am doing all the right things to fight this disease - and still it flares up. I believe that my ability to adjust to the next phase or limit is as important as fighting off the nest phase or limit. Sometimes they clash and I must adjust. I am doing t hat now - one step at a time, or perhaps one less step at a time. And I don't say that in a 'ho-hum-poor-me' way, not at all. It means I know when it is time to make the best of what "IS" rather than wishing for what "ISN'T"!!! I am not there yet with this set back but I will know when that time comes, if it does.
Hopefully my Mom will come home Saturday, as planned. My daughter is going to bring me over on Sunday to spend the afternoon with her. I/we wil bring lunch and keep her company. My sister has to work. I ask again that you all please pray for her strength and for mine too. I don't want to navigate the Appalachian Trail I just want to manage, with little difficulty, being able to get to my Mom, and out and about my neighborhood and town. ok? Too much to hope for? I sure hope not.
And although the following video is dedicated to hurricane and flood victims - I believe, that we all are fighting our own battles - when my Mom couldn't breathe she was drowning in herself - her own inner flood - her fear as she wondered if they would get to her in time - her own emotional hurricane - my fear of immobility - and constant pain - I can be a surge of emotion like a flood washing over me or tossed about in the force of a hurricane - so please, watch and listen to this video with all due honor for the victims of floods and hurricanes but also, please, think of your own personal floods, hurricanes, and how you fought to survive and make it as best you could.





11 comments:
So glad you and Skipp were able to visit your mom and now your daughter is taking you for another visit......how wonderful is that.
I do hope the pt will help you Gail, that she sets up a schedule that you can work well with.
Keeping enjoying Skipp's days off and have a great weekend. Always in my heart and prayers....:-) Hugs
HI BERNIE
Always SO good to have you visit me. I appreciate your continuing prayers, love support and hugs.
Love to you
Gail
peace and hope.....
You do have a good strong positive outlook with everything Gail. Hoping and praying for the best and accepting the moment helps get us through anything. Hope your mom continues to do as well as she has and that your set back shifts into a better place for you.
HI WANDA_
How's life about your beautiful 'nature-land'? I am trying as best I know how to manage and remain positive - thank you for your continued support and kindness and friendship.
Love to you
Gail
peace and hope
Dear Gail,
I'm
Away on holiday and haven't checked my blogroll for a few days but have just read your post and am do moved by what you've written that I wanted to reply and let you know how much I am thinking of you and your mum.
Your bravery is astounding really Gail.., the grace with which you prepare to fight and accept the battles you choose... Incredible.
Much love to you
X
Gail, I love how much faith and strength you have even during the tough times.
The way you describe you time with Skipp is so touching and loving.
I am keeping you in my prayers for this flair to pass. I hope your Mother gets better soon.
The video just tore me up with the music and the photos. Even in our darkest hour we are never alone.
Peace and Love.
Pam
HI WONDERINGSOUL-
I was justover at your blog to see if ther was anything new. We were visiting one another at the same time. How cool is that? :-)
And I too, see you and your fighting your battles equally brave. I hope your flight was uneventful and that your holiday is wonderful. Savor every moment. k? And thank you for taking the time to visit and wish me and my Mom well.
Love to you always
Gail
peace and hope.......
That was a lovely song Gail as was your post. It was very inspiring and it made me happy to know that things are at least progressing in your world. I do pray that your mom makes it home Saturday. I know that will help you feel better too.
I am excited for your upcoming week with Skip. That should also help with your healing!
I know what it's like to live in constant pain. It can be a struggle to stay "up" and "positive"! You are ding well!
Love Di ♥
HI DIANA-
So good to see you and I know you know about living w/pain and still doing what we can and keeping a good outlook. Phew.
YOU are an inspiration to me, and I admire your determination so much. thank you for your continued love and friendship and support and understanding and for sharing MR TOAD - whom I love!! :-)
Love Gail
peace and hope.....
Wow you and your husband were born on the same day! Me and Greg were too! I'm amazed and grateful that you are filled with such hope and faith, and inspire all of us to keep the faith and remain diligent in our struggles. I'm glad your mother's dialysis went well and praying that her health improves. We feel so helpless when our love ones are in pain. I'm also praying for you, dear Gail. You are a real trooper! Stay strong, but don't forget to rest your mind and body. You and your family are continually in my prayers.
PLL, C.
HI CORDIEB
WOW, you and your guy too have the same birthday? true soul mates.
I so appreciate your love and healing light and words of wisdom and support. It is a challenging time. I am so glad you are my friend, 'faith -sister'....
Love to you
Gail
peace and hope.....
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